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Scleroderma can affect young parents, children, grandparents, and teenagers, causing pain, disability, and death. Today, the face of scleroderma includes people of all ages, genders, and backgrounds.
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More than 300,000 Americans live with some type of scleroderma.
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Scleroderma is a rare autoimmune disease that affects connective tissue and the vascular system producing excessive collagen that causes fibrosis in the skin (localized) or in internal organs (systemic sclerosis). Bob Saget’s legacy will live on as we band together to be a relentless force in finding a cure for scleroderma.
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As we begin the new year with a renewed focus on improving the lives of those affected by this complex disease, we are grateful for the impact he made in supporting scleroderma research that will ultimately lead to discovering the cause, understanding the mechanism, and overcoming scleroderma forever. The National Scleroderma Foundation leadership and staff offer their deepest condolences to the Saget family, friends, and colleagues. Saget was a long-time board member of the Scleroderma Research Foundation, a colleague and collaborative organization of the National Scleroderma Foundation. In 1996, he directed a television movie, “For Hope,” that used his sister’s experience as the inspiration for a story about the life-threatening challenges presented by scleroderma. His Hollywood career opened doors for Saget to help people with scleroderma. Motivated by the passing of his sister, Gay, at the age of 47 in 1994 from systemic sclerosis, Bob devoted his life to raising awareness of the disease and funding for scleroderma research. Bob was an incredible advocate for scleroderma and he will be greatly missed. The sudden loss of Bob Saget on Sunday, January 9, 2022, is a terrible loss for his family and the entire scleroderma community.